A day in the life of a special needs family
Sharing this insightful Facebook post from Real Life Foster Mom Chelsea to raise awareness about continuing needs for advocacy and programs for kids with special needs.
https://www.facebook.com/
Sometimes, it’s really hard being a special needs parent & it’s not my kids that make it that way. It’s the constant, exhausting fighting & advocating to get their basic needs met.
Advocating for schools to follow laws that you literally have to explain to them. 🤯
Fighting insurance companies to approve treatments our doctors already prescribed. 💊
Fighting to get medical supplies & equipment maintenance & wheelchair repairs.🦽
Advocating for hospitals to make decisions that help my child. 🏥
Begging for doctors to sign paperwork that has been sitting in their inbox for over a week. 📝
Heck even handicap spots aren’t safe because someone without a placard decided they were just going to park there “real quick while they run inside” for a half hour. 🚙
& that’s just one day.
If you don’t have a medically complex or disabled child or person in your life, you can’t understand the full extent of what is constantly demanded of them & us as their caregivers.
I hate the fight.
It causes a lot of anxiety & stress.
I wish things were as simple as they should be.
- But the scariest part of all of this is: If we let our guard down for even one minute, it’s our kids who pay the price.
Because the reality we’ve faced is, the world is not built for people with disabilities. So if I didn’t advocate as hard as I do, my kids would fall through the cracks & likely wouldn’t have the things they need to thrive.
So yes… the fight is worth it.
Because they are worth it.
To every fellow parent & caregiver in this community—I see your fight. You are not alone. Let’s pray that by the time our kids are adults, they won’t have to fight like this.
But if they do…
They won’t have to fight alone—because I'll be there. 🥊
Chelsea
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