Is my bog too problem vs solution focused?
Yes, Iâm paranoid.
This week I shared some really heavy posts / emails about a couple of topics impacting special needs families in the United Kingdom â
1. Demolishing special ed. support systems (up for a vote in Parliament to slash funding for Education, Health and Care Plans (EHCP)) and
2. Persecution of moms who donât stop asking for help with diagnosis after doctors say thereâs no problem.
It got me wondering how to share more hopeful, uplifting posts from the sea of trauma, grief, and struggle that is my topic (children with a catastrophic medical diagnosis).
The main objectives for my mission are to:
1. Increase public awareness so more not less services are created and sustained for these families.
2. Help families themselves have more hope and sense of control to navigate a life no oneâs prepared for and one inadequately supported by society.
Now today a psychotherapist I follow on Instagram addressed a followerâs compl
...
Hereâs a thought provoking PBS video about caregivers and their adult children or siblings with disabilities.
Who will care for our loved one once weâre gone? is the perpetual terror gnawing at them from the moment the diagonals is understood.
None escape this torment.
â.â
Hundreds of thousands of people with intellectual and developmental disabilities in America are living and receiving care at home.
But their aging caregivers, many of whom are parents or siblings, are worried about who will continue to care for their loved ones when they are gone.
Christopher Booker reports on some steps being taken to support families as part of our series, âRethinking Lifespan.â
A colleague Iâve witnessed struggle for a few years shared the below Facebook post (sorry I can only figure out how to give link to post page, not actual postâŠ)
Sheâs been on an exhausting and scary journey because professionals havenât figured out whatâs going on with her young daughter.
This means that basic needs, such as adaptations at school, have not yet been met.
AND sheâs up against a new practice interfacing with anxious mothers like herâquestionable and concerning professional behavior in the fields of medicine, education, and child protective services.
The mental health conditionâMĂŒnchausen syndromeâalso known as factitious disorder where a person imagines health problems, has been expanded and is being used, without academic or professional validation.
Some consider this expansion as an unethical, unhelpful, and even dangerous practice.
And parents are even losing custody of their children base...
What have you overcome that you previously thought you couldnât?
What tools, memories, or beliefs made that possible?
Where can you apply that more in your life right now?
â.â
I made it through college, one term paper at a time, remembering that I made it over Millys Foot Pass.
Up that EXTREMELY steep, gravely mountain range.
In freezing weather.
Without a trail.
Carrying my own heavy backpack.
âŠ.
Whenever I had NO idea what to write in college but deadlines were imminent, I reminded myself of two things.
1. Thereâs no going back, only forward.
2. If I could accomplish that physically demanding feat I could sure as heck put words on a piece of paper.
What dormant personal agency from the past can YOU activate and leverage now?
âJulieÂ
In honor of veterans, hereâs an incomplete exposĂ© of the price of war on their children, in particular, major medical and psychological impacts.
These issues stem from factors associated with military life and deployment:
1. Indirect exposure to trauma.
2. Stress.
3. Environmental.
This in no way implies that a parent with physical or psychological challenges inherently cause children harm because of their own conditions.
Itâs meant to connect dots and raise awareness of outcomes beyond the veteran themself.
It helps us:
This cursory glance shows what children in families of some military veterans navigate:
â Attachment and relational needscan be disrupted. Attachment patterns, established in the first years of life, unconsciously impact the quality of relationships thereafter.
â Prenatal exposure to toxins (even in a...
As a life coach my job isnât to find solutions for clients.
Thatâs the job of a consultant.
Itâs not to fix people either.
People who are struggling arenât broken, theyâre just discombobulated.
What helps my clients move forward is guidance.
I help define and frame their problems in a way that explains them and reduces pain, just because the problem is correctly framed.
From that structure THEY come up with solutions.
Because what I might do or Betty might do isnât necessarily going to work for them, at least not right then.
Here are a few other things that happen in our coaching program:
â By setting aside consistent, dedicated time to address their problems, clients are more proactive.
â This helps minimize the impact of current problems while sometimes preventing others from popping up.
â Clients get concerns off their chest in a confidential setting. Too often, people keep things bottled up for fear of negative judgment or unsolicited (and unhelpful and unwanted) advic...
In the big picture of things, nonconformity is discouraged while groupthink is encouraged, expected, and rewarded.
Itâs where the comfort zone is.
It also, by definition,
â reduces options,
â stunts innovation and growth,
â sustains mediocrity and excludes excellence.
Whether youâre in a forced or chosen change, those around you want stabilization so they can have predictability again.
Itâs also what you want.
But this Big Temptationâthe fastest path to stabilizationâcauses many to commit prematurely. To settle.
Ending up with mediocrity and frustration instead of wonderful things youâd never imagined.
To break away from groupthink.
To make waves.
To go against the current of status quo.
Even when status quo purports to be âbest practices.â
Even when tradition has âproved itself with the test of time.â
Because best practices and tr...
Most people think change is complicated.
I believe that when we let go of resistance to change we become comfortable being UNcomfortable.
Comfortable beingâŠ
Disoriented.
Confused.
Scared.
Even comfortable being in pain.Â
And when we become comfortable being uncomfortable we stop feeling lost because of it.
We stop feeling defeated because of it.Â
And we improve how we experience change.
We can make a mindset shift to ALLOW ourselves to be comfortable with pain,
with uncertainty,
with difficulty.
And when this happens we lower stress, increase hope, and strengthen our personal agency.
âJulie
Even a good psychotherapist only has a small constellation of âfactsâ about us, the general truths and trends of everyday life and how we might best fit it all together. But their perspective is highly limited.
Persistence is an invisible force within us that others may or may not recognize.
And itâs always ours to own and leverage.
Itâs connected to our need to create sovereignty.
Having clarity of purpose is also ours to develop, through leveraging our personal agency.
And these invisible forces are whatâs needed to achieve hard things.
Over time, weâll learn to love, accept, and respect our intuition, our soulâs whispers.
And weâll get confirmation from retrospect faster, because more often weâre making choices in alignment with our best self.Â
Who do you know needs this validation?Â
It's okay that it still hurtsÂ
and it's okay to not act like it doesn't.
--Julie
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